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Liz, Sue and Vicky had a fantastic time at #ICPP2024 in Pamplona last week convening with the global #Porphyria community! They saw a range of posters and sessions looking at the complications of living with porphyria and its impact on our lives, including talks on bone health and osteoporosis in EPP, the real-world evidence of treatments such as Givosiran, hormonal birth control in the acute porphyrias, and liver and kidney complications. A few key headlines to take away: AIP: a targeted gene-e
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FacebookBritish Porphyria Association Page
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