Soroya Nazarian learned about hereditary inclusion body myopathy (HIBM), an uncommon muscular disorder that affects the Persian Jewish community, while in Israel on a Hadassah mission about five years ...

LOS ANGELES, July 31, 2023 (GLOBE NEWSWIRE) -- Solve GNE, a Los Angeles based non-profit organization, has raised over $2.5 million and negotiated sponsored research agreements with multiple leading ...

Mar. 23 -- WEDNESDAY, June 20 (HealthDay News) -- Research in mice may help in the development of new treatments for a rare degenerative muscle disease called hereditary inclusion body myopathy (HIBM) ...

On a winter evening in 1997, two dozen members of Los Angeles' Persian-Jewish community gathered in a spacious house in Woodland Hills. The home belonged to Houshang and Shokouh Darvish, Persian Jews ...

NOVATO, Calif., Oct. 5, 2011 /PRNewswire/ -- Ultragenyx Pharmaceutical Inc., a biotechnology company focused on developing treatments for rare and ultra-rare genetic disorders, today announced that ...

Based on clues provided by a study with transgenic mice, a research group at the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health (NIH), has developed a ...

As young adults, brothers Babak and Daniel Darvish, born less than two years apart, were avid athletes, music lovers and medical students who planned to become surgeons. But about five years ago, they ...

NOVATO, Calif., Aug. 15, 2011 /PRNewswire/ -- Ultragenyx Pharmaceutical Inc., a biotechnology company focused on developing treatments for rare and ultra-rare genetic disorders, today announced the ...

Figure 1: Favorable effects in the myopathic phenotype of DRMV-hIBM mice are seen after administration of ManNAc but are not correlated with dose. ManNAc was tolerated well by the treated mice, as ...

Based on clues provided by a study with transgenic mice, scientists have developed a strategy that will be tested as the first treatment for people with hereditary inclusion body myopathy (HIBM), a ...